Monday, September 22, 2014

Calling all Prayer Warriors.

Calling all prayer warriors.  We need you.

Over the weekend, my sister-in-law messaged me with a story meant to be shared.  A colleague of hers has a sister, Sue, who is very sick.  Sue is a mother of two kids, and she is waiting for a healthy set of lungs.

Sue suffers from Scleroderma, a rare and complex autoimmune disease.  There is no cure.  In February of 2004,  at the age of 37 and while parenting two children under the age of 3, Sue was diagnosed.  She noticed her hands changing colors (blue, purple) due to stress or the weather and she suffered severe heartburn.  She was also extremely tired.  Sue attributed her fatigue to the parenting grind, but tests revealed her Scleroderma and life has never been the same.

Here is an excerpt from her blog, LeMOMade:

For about four years, doctors were able to keep my health quite stable with the use of several medications and periodic testing and monitoring of my condition. However, I took a turn for the worse in the fall of 2008 when I began to have severe shortness of breath and a horrible cough. Further testing and visits to new specialists revealed that the Scleroderma had affected my lungs. I am now living with pulmonary fibrosis, which is scarring of the lungs, and pulmonary hypertension (PH) which is high blood pressure in the lungs. The PH can potentially lead to right-sided heart failure so it’s important to be treated promptly and properly. Every day, I take many medications to treat these lung complications. In addition, I need to use supplemental oxygen with activity and at night as part of my therapy which also includes pulmonary rehabilitation. A lung transplant may be needed in the future if this is an option for me. 

Since that excerpt, Sue's condition has worsened.  Sue is currently in the ICU at the Cleveland Clinic waiting for a new set of lungs.  Without them, she likely won't survive.  She is far away from her friends and family, fighting to stay positive and praying new lungs will come.  She is a mom like all of us, loving her kids and wanting more than anything to have more time with them.  She wants more hugs, kisses, and laughter; to see them grow old.  Just today as I was writing this, Sue updated her own blog LeMOMade, with a bucket list of all the things she wants to do post transplant.

But Sue needs her lungs to make these things happen.  She also needs prayers, support and donations.  There are many financial struggles that accompany an illness such as hers, and these aren't just medically speaking.  The travel alone for her family to visit her is costing thousands.  If you can donate, donate, If you can pray, pray.  There are many ways to help those in need and any way you can help Sue will bring happiness to a suffering family.  Even an email or a message on her blog.  Let her know how many prayer warriors are out there supporting her.

Every little bit counts.  Let's do this Mamas. Together, we can do great things.

Happy Monday all.  Keep your kids and what is important in mind today.  We never know what's around the bend.  Cherish every moment.

1 comment:

  1. Heartbreaking. My aunt passed away from this disease just weeks after I graduated high school. I will keep this family in my prayers.


Throw in your two cents!